Pacific
Institute for Women's Health - A nonprofit dedicated to improving
women's health and well-being locally and globally through applied
research, advocacy, community involvement, consultation and training.
Areas of concentration are: reproductive and sexual health, women's
rights and empowerment, adolescent health and well being and health
promotion, prevention and access to care.
Patient
Advocacy Groups Home Page - A project of Johns Hopkins' Sidney Kimmel Center containing
listings of more than 100 national disease-related organizations,
organized by the disease.
Prevent
Cancer - The coalition consists of independent experts in cancer
prevention and public health, together with citizen activists and
organized labor, public interest, environmental and women's health
groups. The goal is to reduce cancer rates through a strategy of
outreach, public education, advocacy and public policy initiatives,
establishing prevention as the nation's foremost cancer policy.
Dr. Samuel Epstein's has written a book, The Politics of Cancer
Revisited, which takes up from his earlier book (1978) left off:
The Politics of Cancer.
Department
of Psychiatry, Johns Hopkins - Numerous programs and departments
at the university dealing with child and adolescent psychiatry,
neuropsychiatry and memory, alcohol and chemical dependence services,
depression and related affective disorders, psychiatric neuro-imaging,
the genetics of schizophrenia and affective disorders.
Public
Citizen: This site is one of the strongest consumer advocacy groups in the US with a enviable record for alerting the public to issues of concern.
PubMedCentral
- The NIH is providing a service that includes such journals as
Arthritis Research, BMC Journals, BMJ, Breast Cancer Research, Critical
Care, Genome Biology, Molecular Biology of the Cell, and Proceedings
of the National Academy of Sciences of the United States of America.
They include full text, peer reviewed research papers in the life
sciences.
PDRHeath - Information based on the Physicians Desk Reference guide informing about drugs, both prescription and over-the-counter.
Scientific American's Recreations
Siecus'
Current Books on Sexuality - Even though the web is terribly
convenient, searching for books on sexuality can be fraught with
a list of sex sites brought up by search engines you'd rather avoid.
The Sexuality Information Education Council of the U.S. is long
respected for its prominence in this field. The list of books includes
menopause, sex over sixty, male sexuality, women's sexual health,
a guide to love, sex, and relationships for the disabled, the good
marriage (see Mary
McHugh's survey drawn from Senior Women Web viewers, research
and manuals.
Stanford
University Library's HighWire Press - This site began modestly
enough with the online production of the weekly Journal of Biological
Chemistry, a highly cited (and second largest) peer-reviewed journal.
HighWire now produces 253 sites online, with many more planned. Though
most of these journals are directed to the practicing professional
(including its newest site for evidence-based nursing), they're of
obvious value to the information-seeking consumer. There are financial,
political and the pioneering science/medical sites. There are easy
links to journals with free full-text articles, most recent issues
online and sites for outside USA/Canada.
State
Health Facts Online - Another
service by the Henry J. Kaiser Foundation related to health-care
information. By choosing a topic from the eleven categories of data
comparisons can be made between the states. Notably, one of the
categories is women's health. Information is displayed as tables,
rankings, graphs, or color-coded maps on on demographics, health,
and health policy, including health coverage, access, financing,
and state legislation. It's possible to click on a state or state
label to obtain information about the state and find out how it
compares to the US overall.
Syndromes
of Abnormal Sex Differentiation - The highly-regarded Johns
Hopkins Institute's Children's Center has made this subject into
a booklet.
Suicide
Research Consortium - We quote from the site: "The NIMH
Suicide Research Consortium is comprised primarily of NIMH scientists
across the Institute who also administer research grants. The Consortium
coordinates program development in suicide research across the Institute,
identifies gaps in the scientific knowledge base on suicide across
the life span, stimulates and monitors extramural research on suicide,
keeps abreast of scientific developments in suicidology and public
policy issues related to suicide surveillance, prevention and treatment,
and disseminates science-based information on suicidology to the
public, media, and policy makers. " There's a link to the site, National
Strategy for Suicide Prevention, issues to consider in intervention
research with persons at high risk for suicidality, and a
review of suicide assessment measures for intervention research
with adults and older adults which is 57 pages in length.
Guidelines
for Identification, Assessment, and Treatment Planning for Suicidality
- Developed by the Suicide Risk Advisory Committee of the Risk Management
Foundation of Harvard Medical Institutions and therefore aimed towards
the professional medical community.
Preparing for Surgery: Be
Informed: Questions to Ask Your Doctor Before You Have Surgery:12
basic questions as well as addresses for free pamphlets on anesthesia
and second opinions.
Johns
Hokpins Center for Tuberculosis Research - This site is intended
more for the physician and other professional health care worker
and their disclaimer is serious in tone: "Consumers should never
disregard medical advice or delay in seeking it because of something
they have read on this web site." There is an area for asking questions,
epidemiology and history of TB, occurrence in the U.S. and globally,
characteristics, interactions and drugs.
The Children's Virtual
Pediatric Hospital has pediatric-related sources as well as a section dealing
with children's feelings about hospital stays, etc. There are sites
for those near Australia and Taiwan, too.
WebMD:
- This site contains medical news, a searchable medical library,
tips, message boards, an opportunity to ask questions of experts
in medical fields and links to other sites. One of the current featured
topics is communicating with your physician. There is also a legal
and insurance site relating to such concerns as, "when your claim
is denied."
West
Nile Virus Maps - A new resource on the Atlas' Geological Survey
and a concern in the Northeast. The virus can cause encephalitis
- an inflammation of the brain. WNV interferes with normal central
nervous system functioning. It is closely related to St. Louis encephalitis
virus found in the United States. The series of maps highlights
the U.S. distribution of WNV cases found in humans, wild birds,
chickens and mosquitoes. The CDC provides a Q&A
about the disease. Check with your individual states' health alerts
regarding spraying for the disease.
Wing
of Madness: A Depression Guide - A well organized and inclusive
guide to clinical depression by a lay person (our oldest daughter)
not meant to replace a visit to a professional. Some special areas
of concentration are children, teenagers and women with depression. A discussion and chat forum is available.
Women
With Disabilities - A branch of the National Women's Health
Information Center providing for disabled women and those who care
for them. The site provides sources for information about abuse,
parenting, and sexuality and critical health issues for a variety
of disabilities, including physical, neurological, hearing, speech,
and visual impairment. It will also provide information on psychiatric,
learning, and developmental disabilities, federal laws and regulations
that protect disabled citizens, services and support resources.
News about medical research, statistical information on disabled
women and information for healthcare professionals on improving
healthcare access for women with physical limitations will be available.
Yale
University Online Heart Book - Twenty nine chapters of the heart
book including those covering Women and Heart Disease and Heart
Disease and the Elderly, Adopting a Healthful Diet (written by two
women doctors), including menus, substitutions.
YourCancerRisk
- You may not
want to know the answer to these questions and then again.... This
site gauges risk and lays out preventive measures for ovarian and
other types of cancers common to populations in the US and other
western
countries. Each question is related to a number that represents the
strength of the association between the risk factor and the disease.
The numbers are multiplied to equal your personal risk based on the
risk factors that apply to you. and then compared to the average
risk
for a person your age and sex. Although the factors are general,
it
does give you a relative value for your risk.
Your
Surgery.com - When told you need surgery, a description of the
procedure is usually accompanied by stress on your part and whatever
the surgeon or specialist says is difficult to retain. At this site,
it's possible to view diagrams, animation and models to get a coherent
idea of the procedure. Designed to be an additional and complementary
source of information to a doctor’s care, text and images are clear
and concise. Areas covered include diagnosis, pathology, anatomy,
procedure, complications and recovery. Surgeons in their particular
fields were the source of the information and aided in choosing
the images.
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