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CompareYourCare.org -
The idea of this site is three-fold: Gauging the quality
of your health care and your doctor; finding elementary
knowledge and skills to manage an illness or health need; and
selecting a doctor, health plan, or other provider.
Users select the tool of greatest personal interest
(e.g. asthma, diabetes, adult general health), then are asked a
series of short topical quizzes about their health care, each one
taking one or two minutes to complete. Users get personalized feedback,
including a standardized numeric score, showing how their care
from their doctor compares with others like them. Users also receive
specific information on areas where their care is unusually good
or poor, and tips on how to get better care in each area.
Links
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American
Accreditation HealthCare Commission - Thirteen health-related
website have been certified by this commission. WebMD, WellMed,
InteliHealth (Johns Hopkins), the Health Insurance Association
of America etc.... The commission is a nonprofit group but there
is a lst of its Consultant Partners. There's a number of FAQ's
which should be looked at as well as the sections Disclosure
& Linking, Health Content & Service Delivery, Privacy & Security,
Quality & Oversight and Standards that should be read.
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National
Center for Addiction and Substance Abuse (Columbia University)
- CASA's program demonstrations focused on children at risk,
ex-offender and ex-addicts, and substance abusing women on welfare,
while the Medical Division is conducting an evaluation of substance
abuse treatment nationwide. There are links to other resources
including those to international sites in Canada, New Zealand,
Australia, Sweden, Pan American and the U.N.
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AIDS.org:
Features an archive of articles from the journal AIDS Treatment
News as well as the first accredited continuing education
program on AIDS treatment available online; Alive
& Well Alternative AIDS Information Network: A
community of HIV-positive people who are avoiding drug treatments
and challenge the theory that AIDS is caused the human immunodeficiency
virus.
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AIM
- Administrators in Medicine, Association of State Medical Board
Executive Directors. A number of states link to their medical
boards which, in some but not all cases, allow you to see disciplinary
actions against doctors. Iowa issues the actions taken
in the form of press releases. Maine calls its actions,
Adverse Licensing Actions. Maryland find them under Board
Orders. Massachusetts lists disciplinary actions under Disciplinary
Action List, although that list gives no detail of the original
complaint. The North Carolina Board gives a listing of the original
complaint, the physician's response and subsequent ruling. Rhode
Island goes as far back as 1987 for their list of reprimanded
doctors. There is also information about the licenses individual
doctors hold. The State of Washington has a Medical Quality
Assurance Commission which is available for comments and other
states provide complaint forms.
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American
Society of Clinical Oncology - A nonprofit cancer research
organization dedicated particularly to patient-oriented clinical
research. Features on the site that are useful to the lay person
include ASCO publications, abstracts from the annual meeting,
ASCO Annual Report, updates on legislative developments
and ASCO policy statements on issues such as genetic testing
and pain control. Other specific guides are directed to finding
an oncologist and community and Internet resources.
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BenefitsCheckup
- Sponsored by the National Council on the Aging and funded,
in part, by Lucent Technologies, those over 55 years old can
connect with untapped public assistance regarding Supplemental
Security Income, Medicaid, state drug benefits, Meals on Wheels,
food stamps, health-insurance counseling, veterans' medical
care and transportation; give information about the paperwork
involved; and offer the addresses and phone numbers of local
government offices.
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Bio
Med Central
- BioMed Central publishes peer reviewed research across all
areas of biology and medicine. The site is launching the first
group of research journals in a new publishing initiative that
will allow groups of researchers to publish online journals
representing their community as well as publishing meeting abstracts.
The site highlights recent articles that might provoke or augment
your searches. Bio Med Central is another part of the Current
Science Group as is PubMed and PubMed Central.
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Chemotherapy:
Dealing with the Ill Effects - A pamphlet distributed by
the Department of Medical Oncology of North Bend Medical Center,
Coos Bay, Oregon and prepared by Sue Nowlin,a RN, this is helpful
in those day-to-day living situations that many medical personnel
may not have the time to prepare you for: fatigue, bathing,
shopping, laundry, exercise, energy conservation and much more.
A part of CancerLynx
.
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Cochrane
Collaboration. Cochrane's goals are to prepare, maintain
and promote the accessibility of systematic reviews of the effects
of health care interventions. A unique and valuable resource.
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National
Center for Complementary and Alternative Medicine. The Center
states that its purpose is to "facilitate the evaluation of
alternative medical treatment modalities" to determine their
effectiveness and ... provides for a public information clearinghouse
and a research training program. The NCCAM does not serve
as a referral agency for various alternative medical treatments
or individual practitioners.
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Canadian
Women's Health Network - In English & French; women
representing over 70 organizations from every province and territory.
It "respects the diverse realities of women's lives and takes
an active stance in ending discrimination based on gender, region,
race, age, language, religion, sexual orientation or ability."
Centers of excellence, a clearinghouse of information and a
hotline number are provided.
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CancerandCareers.org
- This site terms itself as "a resource and community for
working women with cancer and their employers, coworkers and
caregivers. " Funded by Cosmetic Executive Women (nonprofit
organization representing women in the U.S. and European beauty
industries) the site aims help women deal with cancer "in
the same way that they have learned to deal with problems at
work strategically, knowledgeably, and effectively. With
the right tools articles, news, charts, checklists, tips
and a community of experts, patients, and survivors women
can continue to work through treatment."
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Cancer
Detection and Prevention Journal Online - Publication of
papers that bear directly or indirectly on primary and secondary
cancer prevention including the role of genetics, biotechnology,
biochemistry, immunology, virology, toxicology, radiation oncology,
pathology, biostatistics, public health, etc. All manuscripts
undergo peer review, most important for the lay person to note
in deciding if the information they are reading online has validity
with professionals in the field. There is a searchable database
of previous articles. I checked under 'Ovarian' and found a
considerable listing of articles I found extremely interesting.
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CancerLinks
- A well-recommended site started by a private individual; with
extensive links that have been pre-sorted for you. Use the tutorials
to understand their search methods; a Spanish language version
is available, too.
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CancerGov
- The National Cancer Institute's site contains sections on
funding, clinical trials, research, general information and
statistics. The search engine will look through an index of
content on Cancer.gov and other NCI Web sites. In many cases,
you will see a list of "Best Bets" above the regular search
results. Best Bets offer links to NCI content that Cancer.gov
staff has determined may be most relevant to a search query.
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Cancer
Trials Help
- Developed by Coalition of National Cancer Cooperative Groups,
has subsections for healthcare professionals, Coalition members,
patient advocates and patients / families / caregivers list is provided
of available trials being conducted by the seven cooperative
groups which are members of the Coalition.
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